On a personal note

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For those of you who follow me on Facebook know that we had to take our son into the emergency room earlier this week. He woke up (extremely) yellow, from head to toe. We were of course alarmed and immediately my husband took him to the E.R.  they quickly began to run a series of test on him and determined that his, White and Red blood cell count was very low and there was something going on with his liver. They began to determine if they would keep him there at the hospital or transport him to another. The E.R. doctor that was working with him had just interned with a Liver Specialist (praise the Lord) at UCSD . Bryce was transported there and has been there since undergoing a number of test to determine the cause. 

Bryce has since undergone a Liver Biopsy, Bone Marrow Sample, CT Scan, MRI and just moments ago a scope to make sure there is no internal bleeding going on.

My husband just called and said they found no internal bleeding but did take a biopsy of his small intestine to make sure no damage has occurred there.

We still don’t have any conclusive findings but they are leaning torwards,

Autoimmune Hepatitis

This is a genetic dysfunction in the immune system where the immune system attacks the liver.

The doctors are still quite surprised, because Bryce shows no signs of being sick other than his yellow skin and blood results.

The Biopsy of the liver came back and it is damaged, the team of doctors are discussing the type of treatment would be best. One of those treatments is the use of Steroids, which will surpress the immune system and give the liver a chance to regenerate. Or do a liver transplant. We of course are praying for the the steroids  to work.

There are several teams of Doctors working on Bryce and they are all perplexed because none of his symptoms match the diagnosis and the fact that he is not acting nor does he feel sick.

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Because Bryce’s immune system is compromised we are unable to go down to the hospital. As of now my husband is the only one able to be with Bryce. (Thankfully).

So I am so grateful for this Blogging World. It will provide something productive to do and it will help my days to go by a bit faster.

Thank you so much to all those who have been praying for Bryce. It is so greatly appreciated.

I will be updating periodically on Fb and here on the blog.

Comments

  1. 1

    Oh my gosh, Angelina! I’m sorry to hear this and my prayers will be with your son, your family and the doctors treating him.

  2. 3

    Prayers to all of you for a quick resolution and a permanent fix for your young fellow. Blessings to momma for patience… breathe deep breaths!!!

  3. 4

    I am so sorry…I pray the steroids will work and he will get better. love and hugs.
    XO
    Kristin

  4. 5

    I’m sending all of my prayers your way…hopefully the steroids will be the answer. Please let me know if there is absolutely anything you need…Love ya girly!

    Jess

  5. 7

    I’ll be praying for your son and for your family. It is a good thing that you hadthis one major symptom to alert you.

  6. 8

    I will keep in in my prayers as well as you and dad. Good news he is being watched carefully and you all are in God’s hands. Di

  7. 9

    Continuing to keep Bryce and all your family in our prayers. Sounds like he in the right place. Hope he responds quickly to the treatment. Take care Angelina.

  8. 10
    Maureen Brown says:

    Hi: I follow you as a blogger and as the Mother of 3 I am thinking of you and sending good vibes to you and Bryce. From personal experience I know that you can still be ill without exhibitng the “usual” symtoms. He’s in a good place!

  9. 11

    Oh Angelina, I am so so so sorry you are going through this. I am praying for Bryce and your family. I hope he has a good (and speedy) recovery and that you are able to get some answers soon. Hugs x a million… Malia

  10. 12

    I will keep Bryce, you, and your family in my prayers. There is nothing scarier than a sick child. Sending you tons of ((((hugs))))!!!

    Tiff

  11. 13

    Our prayers are with you.

  12. 14

    Prayimg for you and your family. It is especially hard when it is one of your children..

  13. 15

    May God guide the hands of the doctor’s and nurse’s and give them all the knowledge they need to find the best way to treat Bryce. May God give you and your family comfort through this trying time. God Bless you and your family.

  14. 16

    I am praying for you and your beautiful son

  15. 17

    Life can certainly throw us some curve balls, huh?! My own personal experience, both as a patient and as a former Pediatric RN, has shown me that. Steroids can do amazing things for/to the human body, while having some pretty icky side-effects. I’ll pray specifically that Bryce begins to heal quickly, knowing that his Healing will come from The Great Physician.

    Angelina, doctors and medical tests & the results can often be so wrong. In Oct. 2008, I was sent home from Mayo Clinic with a prognosis of “maybe” 6 weeks to live. Yet, here I am! Definitely not well, but alive. He is so Good! I have and will continue to pray for your Mama-Heart and for Bryce and all of your family members. Also for every person who comes into contact with Bryce. That they will have kind hearts, Mercy and Grace in the times of physical pain and a Wisdom that comes from above in making decisions for your sweet son.
    Love to All ~ Jo

  16. 18

    Hi, Angelina

    I am lifting your son up in prayer. I will be praying for you and your husband for strength and wisdom, but most importantly for the doctor’s to have wisdom on the right treatment for your son.

    Vanessa

  17. 19

    my heart goes out to you, angelina. i know what you are going through… one of mine was diagnosed with autoimmune hepatitis type 2, last month.

    i’m so sorry to hear your son is going through this. i will keep you and your beautiful family in my prayers.

    xo
    molly

    • 20

      Oh, Thank you Molly. I would love to talk to you about it. Would you mine if I email you or you can email me?

  18. 21

    So sorry! I hope they have an accurate diagnosis and treatment soon. Our neighbor boy has been going through chemo once a month for the past year and his mom mentioned that the doctors and nurses are always amazed that he doesn’t feel sicker with it than he is because he gets an unusually large dose. They figure it’s a tender mercy…even though he’s had to go through chemo it hasn’t been as bad as it could be. Just a thought…not that I think your son has cancer, just that sometime God sends a miracle even if it’s not the miracle we would have chosen.

  19. 22

    Blessings to you and your family .. Your family is now in our prayers for a healthy recovery
    Since I do not have a facebook account; I had no idea and when I read this; first thing I could thing of was to pray for you and your family.

  20. 23

    Well, if Bryce is not a chip off the old block, he looks just like his Mommy! What a brave boy, I am sure this is really scary, not to mention painful (Bone marrow…ouch) We are all here for you and your family and praying that the steroids work their magic. What a lucky boy to have such a wonderful family that loves you sooooo much!

    Auntie Carol

  21. 24

    Angelina, I am continuing to lift Bryce, you, and your whole family up in prayer. It is comforting to know that he is not feeling sick.

  22. 25

    God will wrap him in His arms and will comfort him and heal him. I will pray for you and Bryce and family.

    Linda

  23. 26

    You can count on me/us praying for you son!
    My heart feels for you (hey I am a mother as well ;)

    Hang in there girl!
    God will get you through this!

    Love in Him,

    Sandy

  24. 27

    Angelina…I am so so sorry for what is happening. Your poor son and so out of the blue like this! I hope he is feeling a little bit better…God Bless him he looks wonderful and seems to be taking all of this in his stride. Oh what you must be going through not being able to go see him. I hope and pray that they find the perfect road to take for his health and well being. If you need ANYTHING…ANYTHING at all…please let me know…I wish I could lend you 10 helping hands…you are such a wonderful …caring and loving person and your have a beautiful family…I hope and pray that things get better with each passing day…sending you all much love and many hugs

  25. 29

    Hi I’m Bryce I’m doing great thank you for your Prayer’s for me, and your concern for my mother, I love her very much , so please keep praying that I get better and get to come home very soon.
    Bryce

  26. 30

    We are praying daily for Bryce! It was so great to see his update on your Facebook page today. So wonderful to know we serve a loving God who is the same yesterday, today and tomorrow! Keep us updated.

    Heather

  27. 32

    I’m so glad to see him smiling and you have put your trust on the Lord…blessings and hang in there Bryce…xo

    • 33

      Thank you so much, Lucy. Yes we have totally put our trust in the Lord and it has given us such peace and comfort as well as Bryce.

  28. 34

    I’ve had liver and kidney problems. There is a lot of amazing medical science out there. I’m sure you are in good hands. God’s blessing on all of you – especially your son. Janet

  29. 35

    Praying for your son. xx

  30. 36

    I am so sorry your precious son is going through all this. Praying for his complete recovery.

  31. 37

    Anjielina, I am so sorry to hear about your sons illness. I know this is very frighting to you, and your husband, and also to your son. Know that the Lord is in control, and he has the answer. Sometimes we just have to walk by faith, believing that He will take care of things. Praying they will find an answer real soon, and your son will be up and healthy again.
    ( Saw your blog mentioned on Polk a Dot Closset.)
    Will be keeping up with his progress.
    Prayers, Carolyn

  32. 39
    Jane Harray says:

    I came from YOT (Malia) because she receommended your blog. She is just the sweetest girl. I read this and thought I should let you know I will add your son to my prayers. I hope all goes well and you keep posting on your blog. Prayers and hugs.

  33. 41

    Found your blog through the Polka Dot Closet. My 19 year old daughter was diagnosed with AutoImmune Hepatitis about 5 years ago. I’d never even heard of it before. My daughter will probably need a transplant within the next year or so. Please feel free to contact me if you have any questions (though I can’t promise I have answers) or if you just want to talk to someone else who understands… I’m praying for you and your family.

    • 42

      Hello Sue,
      Thank you so much for coming by. I would love to email you. They just mentioned to us today about the possibility of having to have a transplant down the road if not now.. I had never heard of it myself.Until now.

  34. 44

    New follower and just seeing this. Sending prayers up for your little man!! Hugs, Claire

  35. 45

    Oh my! It must be so hard not to be able to be with him! I will continue to lift you all up! ♥

  36. 46

    Saying a prayer for your precious son.

  37. 47

    Goodness. I am so sorry to hear about Bryce. I came to your blog following from Craftberry Bush. Please know your son will be in my prayers and I will check back in on his progress. I too, am autoimmune. I have systemic Lupus.

    Hug,
    Cara

    • 48

      oh, thank you so much Cara for your thoughts and prayers. It’s amazing how many people have autoimmune diseases. My sister has Hyper Thyroid. Graves and Addisons Disease.

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